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CF Kids of Portsmouth
As well as my nephews, there are 30 other families in Portsmouth all with children suffering with CF.
Due to the likelihood of those with CF cross-infecting each other, suffers are not able to meet, making a support network difficult. That’s why the families of those children with CF in Portsmouth have set up CF Kids - to raise funds to make the lives of their children better and help all those suffering in the local area breathe easier.
Funds will primarily buy equipment. Technological advances are enabling a family’s quality of life to be significantly enhanced, yet due to limited funds within the NHS, many families within the Portsmouth area being denied access to the most up-to-date and often time saving technology on cost grounds.
Everyday equipment such as nebulizers, that administer medicines for inhalation up to three times a day, can now be given in two minutes rather than 20. This is a difference between having to keep your small child occupied and still for six minutes a day, rather than an hour, when they know their brothers, sisters or friends are elsewhere playing. Yet this latest machine, costing more than 400, is not being provided to every family through the NHS and can only be acquired privately.
CF Kids of Portsmouth receives no Government funding and is entirely dependent on raising money through events such as these - so please lend your support.
From my efforts this year, CF Kids are hoping to be able to buy a Spirometry
machine for the local hospital, which will better monitor each child’s
condition and help to prevent infection. The machine costs 76k and will
be kept at the local, St Mary’s, hospital. Although hugely beneficial
to those with CF, this machine will also benefit anyone with respirtory
problems such as Asthma.
If you wish to sponsor me to support the work of CF Kids of Portsmouth, please do so by clicking on the following link
www.JustGiving.com/600miles6continents
